We met with the coordinator of the Cardiac NICU yesterday. She took us on a tour and told us what i guess we had been waiting to hear.. WHATS GONNA HAPPEN??? She explained that when Kadence is born she will have another Echo done on her heart and that will determine when she will be moved from Parkland NICU to Childrens Cardiac NICU. She will then be started on a Medicine to keep her PDA (extra blood vessel below her aorta) open. Her PDA is the only thing sending blood to the rest of her body right now, and it would normally close 2 days after birth. This medicine will make her body think she is still a fetus, making her forget she needs to breathe.. Which will result in a a breathing tube in her mouth. She will also most lilely not be able to eat when she is first born causing her to forget how to suck, so after a couple weeks of recovery we will have to teach her how to eat. They said that until then she will have a feeding tube from her nose to her tummy. She will also be started on the medication (digoxin) i have been taking to keep her heart at a normal rate.
We were told she will be in the Cardiac Nicu for maybe a week after surgery.. She will then be moved to the Cardiac recovery unit for 2-3 weeks.
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